So, we took Thomas for his final post-surgical checkup with the cardiologist. Expecting to be the last time we were in Phoenix for a while, we hoped to get the, everything looks good we'll see you in six months, or at the worst, we'll see you in three months.
Well, after they performed an echo (ultrasound) on his heart, the cardiologist comes in and tells us he has a very large amount of fluid around his heart pushing on one side, most likely its inflamation from surgery, but we absolutely need to go in and get it, and keep him overnight. Of course...
So they put Thomas out, back on the breathing tube, back in the ICU, and they perform the procedure to go take it out. They remove about a 1/4 of a cup, oh except its not clear inflamation, its not blood, it doesn't appear to be an infection, well... we don't know what it is exactly. Analyze, wait, culture, wait some more. We think it's fat cells from his diet.....???? Who knows what's going on, but one night just turned into a likely week, as he has drained another 1/2 cup of milky substance out the cathetors they left lying up next to his heart. They are talking about putting him on a low fat diet to try and seal what they think is a breach is some lipid line... that oh yeah... wa probably nicked during surgery. If that doesn't work, did I mention he won't take a bottle, never would, then if the whole is big enough then we're talking more surgery.
I'm just ranting here while I ran home to get supplies, for the unexpected stay, we obviously didn't take anything with us, and just wanted to catch everyone up on our "perfect" lives.
-Paul
Well, after they performed an echo (ultrasound) on his heart, the cardiologist comes in and tells us he has a very large amount of fluid around his heart pushing on one side, most likely its inflamation from surgery, but we absolutely need to go in and get it, and keep him overnight. Of course...
So they put Thomas out, back on the breathing tube, back in the ICU, and they perform the procedure to go take it out. They remove about a 1/4 of a cup, oh except its not clear inflamation, its not blood, it doesn't appear to be an infection, well... we don't know what it is exactly. Analyze, wait, culture, wait some more. We think it's fat cells from his diet.....???? Who knows what's going on, but one night just turned into a likely week, as he has drained another 1/2 cup of milky substance out the cathetors they left lying up next to his heart. They are talking about putting him on a low fat diet to try and seal what they think is a breach is some lipid line... that oh yeah... wa probably nicked during surgery. If that doesn't work, did I mention he won't take a bottle, never would, then if the whole is big enough then we're talking more surgery.
I'm just ranting here while I ran home to get supplies, for the unexpected stay, we obviously didn't take anything with us, and just wanted to catch everyone up on our "perfect" lives.
-Paul
Cell phone pictures from this time around... at least he's smiling that makes one of us.
8 comments:
I'm so sorry to hear about these complications. Who wants bad news when you were expecting to be done? I feel so bad. We will continue to pray for him. We have been thinking and praying for him often. My grandpa always says...keep your chin in the wind.
I am so sorry you guys, I don't even know how you're dealing with this, I would be a wreck. Please let us know if we can do something for you. Can I at least bring you dinner when you get home?
Hang in there guys. (I know, easier said then done). We know it's hard to see your child all hooked up but know it's for a good reason. The doctors seem to be taking good care of him. And you guys are taking this like champs. Remember, breakdowns are okay and normal. You have so many people who love and care about you and Thomas, you are in all of our prayers. By the way, how did the house thing turn out?
Audrey and Lee
We're thinking of you guys. Let me know if I can do anything to help...after all, I am right across the street now! :) After rain comes rainbows...and yours deserves to be beautiful.
Hang in there guys. Sid and I found that after bad things happen - great things seem to follow.
We are praying for your guys!!
Hey guys! I am soo sorry to hear about what is going on. I can't even come close to comprhending what you guys are going through but we will keep Thomas is our prayer, and you guys also (to be able to handle these trying times well) Things will work out they always do. The Lord is always there!
We love you guys and miss you. give Thomas a huge kiss and hug from us!
Hey Julie and Paul! It's the Owen's! (Richard and Lindsey, from Grand Forks). I'm sorry to hear about all that is going on, I hope all works out! We're in Phoenix now, so if you ever need a place to stay, let us know! a_nodak_14@yahoo.com
Oh, that must be impossibly hard. Know that you're all in our prayers, especially sweet Thomas.
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