Okay, well I wrote yesterday, everything was going well, Thomas was off the life support and doing well. Well, he got a little too comfortable.
During the night Julie woke me up in a panic. Thomas heart rate had dropped, it was no longer beating on its own, the box was doing it for him. He was unresponsive, to people yelling at him, smacking his feet, even shoving a tube down his throat to suction him had no effect. Up to this point he had been pretty easy to startle. His eyes sockets were sunk in his eyes rolled to the back of his head, and his little soft spot was all sunken in. So, yeah we were scared.
They yanked all his pain medicine again this time, all the drips, and were preparing for a blood transfusion. We sat their for what seemed like hours waiting for the sedation, and other drugs to wear off, for the pain to shock his little beat up body back to life again. Slowly, his heart started to take its own beats again, first one and then a couple together, and after a while it was beating again on its own. We stayed up the rest of the night and into early morning watching our little boy and staring at the monitors just willing them to confirm our boy was alright.
Things are good now, I won't say that today was uneventful, it wasn't. But, they were good events. He got re-hydrated, they finally let him eat, even if it is through a tube in his nose (which he hates by the way - his arms are tied to the bed so he doesn't pull it out. He is off the heart box, he still has the electrical wires inside him wired to his heart just in case. They pulled out most of his IVs including the ones in his neck and groin, his chest tube, the catheter, and the dressing on his wound. He really is starting to look more like our little boy again. They moved him to a smaller bed, let him try to nurse (he threw up everywhere.) And decided he is going through narcotic withdrawals. So they just started him back on one medicine to calm his nerves and take the edge off, we are a little nervous because of last night, but I guess it's better than watching the poor guy wig out and be jonesing for his drugs. He'll try and eat again tomorrow and if he does well, hopefully we can get that tube out of his nose, that should help him feel better. So if your keeping score we are down to 1 IV, 1 feeding tube, a small amount of oxygen support in the nose canals, 4 heart wires just in case, and only 4 electrode monitors for his vitals.
Crazy, but that is a VAST improvement, we might actually get home before May :) Here's hoping for a quite night!
Saturday, April 19, 2008
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4 comments:
Oh, I feel so sad after reading about what happened to him. Poor little guy! Heavenly Father must really be blessing you as you go through all of this. We have been praying for him and will continue to do so. It's a good thing that he will never remember this experience. You are in our thoughts and prayers. Good luck.
Wish we could say/do something to make this all better for all of you. We are thinking and praying for you guys! Hang in there!
Hang in there you guys! What an emotional ride. You have been in my thoughts and prayers constantly. And I am so glad that you have been posting so we can keep up with what's going on without bugging you down in PHX. We'll talk soon!
I have a nephew who had major abdominal surgery when he was just a few days old - so he's got a pretty good scar on his belly. HE is 7 now but his dad always told him that when he was made that's where they put his "super powers" in. I guess Thomas will have some "super powers" too!
This was very sad for me to read, but I couldn't help but chuckle at the phrases "wig out" & "jonesing"! We love you Thomas! No more wiggin out!
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